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Research Data Management and Research Ethics

Research Data Management and Research Ethics 

This session will address the overlap between the ethical conduct of research with human participants and research data management practices. We will provide an overview of ethics-related standards relating to data management, and discuss practical strategies researchers should undertake to ensure human participant privacy and confidentiality is protected in data collection, analyses and storage.

Dr. Stacey Page, PhD is an Associate Professor in the Department of Community Health Sciences, Cumming School of Medicine, University of Calgary and an Adjunct Professor, Alberta University of the Arts.  She has close to 20 years of REB experience in varied roles - as a student, administrator, advisor, member, researcher and vice chair.   She currently Chairs the Conjoint Health Research Ethics Board at the University of Calgary, is a member of the Human Research Ethics Board, Mount Royal University as well as a member of the Research Ethics Board, Alberta University of the Arts.

Jenny Godley, PhD, does research on the mechanisms through which social class affects health. She uses some secondary data, including both public use Statistics Canada datasets and microdata available in the Research Data Centre, and administrative health data, and also collects her own data using survey and social network methods. 

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Research Data Management and Research Ethics 

Research Data Management and Research Ethics--Section 1: Introduction 
Research Data Management and Research Ethics--Section 2: Session Overview 
Research Data Management and Research Ethics--Section 3: What Data Represents 
Research Data Management and Research Ethics--Section 4: Data and Research Ethics 
Research Data Management and Research Ethics--Section 5: Research Ethics Review 
Research Data Management and Research Ethics--Section 6: RDM Plan and Ethics Application 
Research Data Management and Research Ethics--Section 7: Think Like a Participant 
Research Data Management and Research Ethics--Section 8: Integrating RDM Plan into Ethics Application 
Research Data Management and Research Ethics--Section 9: Data Storage, Retention, and Disposal 
Research Data Management and Research Ethics--Section 10: Informed Consent Forms 
Research Data Management and Research Ethics--Section 11: Reducing the Risk of Deductive Disclosure 
Research Data Management and Research Ethics 
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